When Chingching was diagnosed with Costello syndrome, doctors told her mother that she could only train her muscles voluntarily from the age of nine months.
A few years later, Mrs. Chan is grateful her daughter has developed a tough personality. She seldom throws tantrums and tries her best to endure all the surgeries.
Costello syndrome is a disorder that affects many parts of the body. The condition is characterized by delayed development and intellectual disability. There are fewer than five cases of Costello syndrome in Hong Kong.
Even when Chingching was up for surgery, she would comfort her mother by telling her that she could go swim after she gets well.
Mrs. Chan’s husband, son and doctor have given her unlimited support, but Chingching’s understanding and strong personality have also become her mother’s biggest strength.
Mrs. Chan’s son also gives her support and shows how understanding he can be by comforting her during Chingching’s surgeries.
Chingching’s older brother is 11 years old and loves to play piano with her.
“It was amazing that she has been able to learn how to read sheet music, but she really did it,” Mrs. Chan told Apple Daily.
Chingching cannot speak properly but she managed to learn how to communicate with her mother via WhatsApp.
“People have told me that my daughter cannot go to band one schools, but I wasn’t very good at academics myself and I don’t need her to be anything but happy,” Mrs. Chan said.
“Many people are curious about her skin color but I just told her to be happy and ignore their stares.”
Chingching has been previously diagnosed with serious mental retardation but she has improved in her intellectual ability. She is now classified as mildly retarded.
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